My MS

Diagnosed with MS, Multiple Sclerosis, in 2007 began a difficult and scary journey. I have been lucky, compared to many other MS patients, but none-the-less my story is one that will resonate with other people living with chronic illness.

The purpose of this blog is one of therapy, for me mostly; but I do hope that if you stumble upon it, you will possibly learn something about MS and consider the thousands who live with the cruel disease each day. We need your help; donations, time, resources, but mostly we need understanding. We need understanding because for most MS patients, you wouldn't know us to look at us- we look just like your neighbors, teachers, doctors, clerks, and clergy. That is one of the most difficult aspects of this disease, in my opinion. Unless I am having a relapse, I don't LOOK sick.

I am hopeful that this blog will open a conversation with some, allow others insight, and give me an outlet.

Thanks for joining me!

Alison and Jeremy

Alison and Jeremy
Just Us

Monday, April 11, 2011

Week 2

Today is Monday and it marks the start of the second week of my MS relapse.  The relapse began the week before my Spring Break; the week before family was to converge on our house for a nice relaxing visit; the week before I had all sorts of plans for fun and entertainment.

I woke up as I would on any other weekday, though things were a bit fuzzy.  I thought my contacts were stuck on my eyes again, and began to make my way to the alarm clock sounding in the kitchen (yes that is where I keep it!).  Jeremy was there attempting to shut it off so when he saw me coming he greeted me- only I could just hear him. I couldn't see him.  As I began to awaken more, I realized I wasn't walking correctly either.  I tried to talk and my speech was somewhat slurred as I recall; I really couldn't get the words out.  I mumbled- something is wrong and Jeremy held out his hand to help me back to the bedroom.

I needed help.  I couldn't manage to get back in bed.  I knew I couldn't go to work, but for how long?  Just the day?  With MS- who knows?  SOMETIMES I can bounce back after a few more hours of rest.  Jeremy let my school know I wouldn't be in....and so it began.

Family came and went, trips to the zoo and other fun places were squashed by my immobility or by the weather. My good times with family were had alright, as long as they straddled the infusion therapy I would require for five days and the many many naps and early nights I would require.  What good sports!  Luckily we are a family who loves to play games so there were many a game-night in the Martinez household during this stay-cation!

So, here I sit another week at home.  Only, this time, there is no one here with me except my loyal pup who becomes ever more curious when she hears me clanking around in the kitchen.  I am struck at how she never tires of that sound- how each time she bounds into the kitchen with renewed enthusiasm for what might be.  I think I will take a page from my loyal friend's book- each day is a new one.  Each day brings new hope for recovery and I am reminded that God brings that "new" every time He lays His hands.

1 comment:

  1. Wow, Alison! You are going through a lot and thank you for creating this page because I have no idea what it's like to live with MS. I will keep you in my thoughts and prayers. -Nadia

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