My MS

Diagnosed with MS, Multiple Sclerosis, in 2007 began a difficult and scary journey. I have been lucky, compared to many other MS patients, but none-the-less my story is one that will resonate with other people living with chronic illness.

The purpose of this blog is one of therapy, for me mostly; but I do hope that if you stumble upon it, you will possibly learn something about MS and consider the thousands who live with the cruel disease each day. We need your help; donations, time, resources, but mostly we need understanding. We need understanding because for most MS patients, you wouldn't know us to look at us- we look just like your neighbors, teachers, doctors, clerks, and clergy. That is one of the most difficult aspects of this disease, in my opinion. Unless I am having a relapse, I don't LOOK sick.

I am hopeful that this blog will open a conversation with some, allow others insight, and give me an outlet.

Thanks for joining me!

Alison and Jeremy

Alison and Jeremy
Just Us

Monday, April 18, 2011

Leaving my Mom

My sweet mother came to stay with me/us last Tuesday. She somehow, without my saying it, knew I needed her and she came. Call it mother's intuition, but she knew. She used her frequent flyer mileage to fly from Houston to Lexington and stay with me for almost a week. I felt measurably better the moment I saw her and was able to hug her, cry in her arms and sniffle, "I love you Mom." Sappy, huh! But so true!

Now, today, she is leaving to back home. Her time here has been wonderful. To have her all to myself, just her.

My symptoms are improving, albeit slowly. I am able to read the time on the cable box, I can read some print, and I am able to drive now! Obviously, I can see well enough to drive. I wouldn't do it if it wasn't safe for me or the other drivers :) I am going back to work tomorrow, with the promise to both Jeremy and Mom that I won't over do it and will go home if I get tired or weak. That is going to be a difficult promise to keep. I feel so much guilt about not being ABLE to do what I am accustomed to doing or what I think I should be able to do.

But a promise is a promise..... keep those prayers coming!

PS- I get to see my mom, dad, and Mimi this weekend when we celebrate Makayla's (my niece) FIRST birthday with Aaron and Ashleigh in Bloomington, IN.
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3 comments:

  1. MamaweexApril 18, 2011 at 6:32 PM

    Know it was immeasurably important for your mom to be there, understanding in the way only she can! Just take it easy--keep your promise!!--and allow yourself to rebuild step by step. So pleased you are improving; I know it's been a rough few weeks. Have been thinking of you thru it. Enjoy Makayla's birthday. Take care!! Hugs, christie

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  2. UnknownApril 18, 2011 at 7:17 PM

    My thoughts and prayers are with you! I was diagnosed with MS almost 2 years ago, and have lived with my mothers MS for almost 40 years. Remember to take the time you need to re-energize your body and spirit.

    Susan Hennings

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  3. majoApril 18, 2011 at 9:39 PM

    I am thinking of you. It is Holy week so I will be praying for you and I hope the holy spirit heals you my friend. I am so glad your mom came to help. Nothing is better than having your mom with you when you need her. Love you.

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