My MS

Diagnosed with MS, Multiple Sclerosis, in 2007 began a difficult and scary journey. I have been lucky, compared to many other MS patients, but none-the-less my story is one that will resonate with other people living with chronic illness.

The purpose of this blog is one of therapy, for me mostly; but I do hope that if you stumble upon it, you will possibly learn something about MS and consider the thousands who live with the cruel disease each day. We need your help; donations, time, resources, but mostly we need understanding. We need understanding because for most MS patients, you wouldn't know us to look at us- we look just like your neighbors, teachers, doctors, clerks, and clergy. That is one of the most difficult aspects of this disease, in my opinion. Unless I am having a relapse, I don't LOOK sick.

I am hopeful that this blog will open a conversation with some, allow others insight, and give me an outlet.

Thanks for joining me!

Alison and Jeremy

Alison and Jeremy
Just Us

Friday, May 20, 2011

Leads me to wonder

It has been almost a year since I moved to Kentucky and I am not sure I am any closer to feeling settled. Sure, I am finally with my love Jeremy; we are in our home; I don't get lost as often. But, I am not in a job I love. Granted, I love the teachers I work with and the kids, but the school has plans for next year that don't include me so that leaves me jobless. I have always defined myself by the work I do: I am a teacher. Now, I find myself wondering.... what does it say about me that I can no longer define myself that way?

I can't decide how much of the way I am feeling can be accredited to the situation of not having my contract renewed for next year. Or, how much is it related to the sour taste I am left with after not really being given a fair shake? Or, still, how much is because I have been so ill for two months now?

I don't have the drive or passion I once had. What does that say about me? Am I in a rut? A slump? Or, is it time to make a change? Obviously, I am still healing. I haven't made a full week (5 full days) of work since the end of March. I guess time will tell and I am so glad that in 15 more days I will have a lot of it on my hands!

Friday, May 6, 2011

Progress oh glorious progress!

Today, Friday, May 6th I noticed I am WALKING better than I have in over a MONTH! YEAH! God is good and so powerful!

I find myself thinking about gratitude. I am grateful for my wonderful husband, my amazing and supportive family, and my thoughtful friends. I know this has been a collaborative effort and I am grateful. Also in the news of my life, I have been able to work FOUR days this week and three of them were ALL DAY!

My goal next week is to start my day at my normal time. Who would have thought that I would set a goal to wake up at 5:30 in the morning to go to work?? But, there you have it!

In work related news, I am actively pursuing other positions since mine was "eliminated" for next year. I never really wanted to be back in this position again... of course who does. So I am pounding out that resume, working on cover letters, and trying to stay positive in a job market that is more intense than any before. Good gravy! If all else fails, I always have the lotto, right? Oh, wait, you have the PLAY to WIN! Darn.

Wednesday, May 4, 2011

Keep Truckin!

Well, yesterday I made a WHOLE day at work (8-2:30) and then today I couldn't make it in! BLAH! I couldn't walk well when I woke up, so I thought I had better stay home. Then, to my surprise, I slept until 3PM. GOOD GRIEF!

I have started physical therapy but with my snoozing today I didn't get to go to my session :(. I am really frustrated, to say the least! But, I will take it one day at a time and keep on truckin!